Spunk to spare

Closely monitoring her input/output has obviously yielded the desired results. Her weight is down. Sounds like a bad thing but since her weight has been fluid it’s actually good.

The new diuretic is doing it’s thing. She pees constantly. She’s actually wearing the nasal cannula (her oxygen) in her nose instead of taped just below it. She sounds like she has a speech impediment. Mom I’m bored comes out sounding like Mom I’m bowed. It’s pretty hilarious.

She’s been allowed to have 15cc’s of ice tea or water every hour for the last 2 days. Since she looks good Dr. Boyle increased her daily fluids by 250cc so she can have 25cc an hour today. She’s pretty excited about that.

She hasn’t slept at night in 2 days. She takes cat naps during the day and then is up chit chatting with the nurses at night. Amusing yes, but on the flip side she’s exhausted and it’s making her cranky. She’s decided that she would handle potty time alone and she wants everyone out of the room while she does it. Aunt Nik got to here her yell at me last night because I kept peeking to make sure she wasn’t trying to sneak something to drink.

I’m going to see what i can do about getting her out of bed this evening and moving around a little. Maybe she’ll sleep better.

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Published by Chrissy Snider

Zoe’s Heart began the day our world changed. My daughter, Zoe, received a heart transplant at just six years old. Six. In the span of childhood milestones and bedtime stories, we learned words like “transplant,” “rejection,” “ICU,” and “donor family.” We learned what it means to wait. To hope. To live in the in-between. This blog is our way of sharing the journey — the beautiful, the terrifying, the exhausting, and the miraculous. Zoe’s Heart exists for two reasons: To keep our family and friends updated as we walk this road. And to advocate fiercely for organ donation — because someone else’s yes saved my daughter’s life. This space is raw. It’s honest. It doesn’t pretend the hard parts don’t exist. But it also refuses to ignore the hope. We believe in celebrating progress, honoring the gift of life, and speaking openly about what transplant families experience behind hospital doors. Zoe is living proof that generosity changes everything. Thank you for being here. Thank you for following her journey. And if you ever find yourself wondering whether organ donation matters — it does. It saved our girl. Welcome to Zoe’s Heart.