Baby Steps

Everyday is a pretty much the same, except when it isn’t.

She’s been unhooked from her Iv’s. She still has the broviac in her abdomen but she gets 1 med a day into it and it only takes an hour so the rest of the time she’s free to roam. She walks a little better, with a little less support everyday. She eats a little more everyday and is awake more and getting back onto a normal schedule again as far as sleeping goes.

Back in the ICU, when she was on the vent, she had a touch of plebitis (inflammation of the vein) from an IV. It was pretty far up her right thigh but the IV was pulled as soon as it was noticed. The vein was pretty hard but the cultures all came back negative so it wasn’t an infection just a reaction to the IV. Why am I bringing this up now? Well it seems that the vein hardening is working it’s way back down the leg and it’s left the vein pretty tender. Flexing the muscles around that vein and pressure on her calf cause her pain. Because of that she’s been trying not to put her right foot flat on the floor. She needs to work that muscle to loosen it up and help alleviate the pain. She’s not real keen on this idea because it hurts so to force her to do it I brought her tennis shoes in and she’s been wearing them when she goes walking.

Physical Therapy has been working with her and she starts cardiac rehab Monday. She’s gonna hit the treadmill for a little walk and see how she does. She’s not looking forward to it.

She has her first biopsy Tuesday the 16th. If that looks good we may be going home Tuesday night. If not, we’ll either stay here a little longer or head over to Ronald McDonald House until her next biopsy which is 2 weeks after the first 1 (4 weeks from the transplant).

Here’s some pictures from the last couple weeks: