I almost forgot

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Mike got the hospital bill. It’s $650,000 with our portion being about $3,000. Not bad but still overwhelming. I’ve done the math and once Zoe is taking only the 3 medications she’ll stay on forever, her medications will run us about $3,600 a year. Right now it’s a little more with the extra meds. Her Cellcept and her Prograff are the expensive ones. Cellcept can only be filled from a University facility and it runs $275.00 every 3 months. The Prograff is the pricey one. It’s $200 a month. Yes that’s with insurance. The price went up $100 this year but without insurance it’s $1,000.

I want to thank everyone for their continued support. We couldn’t do this without you.

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Published by Chrissy Snider

Zoe’s Heart began the day our world changed. My daughter, Zoe, received a heart transplant at just six years old. Six. In the span of childhood milestones and bedtime stories, we learned words like “transplant,” “rejection,” “ICU,” and “donor family.” We learned what it means to wait. To hope. To live in the in-between. This blog is our way of sharing the journey — the beautiful, the terrifying, the exhausting, and the miraculous. Zoe’s Heart exists for two reasons: To keep our family and friends updated as we walk this road. And to advocate fiercely for organ donation — because someone else’s yes saved my daughter’s life. This space is raw. It’s honest. It doesn’t pretend the hard parts don’t exist. But it also refuses to ignore the hope. We believe in celebrating progress, honoring the gift of life, and speaking openly about what transplant families experience behind hospital doors. Zoe is living proof that generosity changes everything. Thank you for being here. Thank you for following her journey. And if you ever find yourself wondering whether organ donation matters — it does. It saved our girl. Welcome to Zoe’s Heart.

2 comments on “I almost forgot”

  1. santa

    February 2, 2009 at 10:48 pm

    sounds to me like the easter bunny needs to be called.
    zoe, dance and sing and rock out that guitar!

  2. Miss Daisy

    February 3, 2009 at 1:27 pm

    I’m sorry to hear Zoe’s friend isn’t doing well. I’m remembering her in my prayers.

    I almost feel guilty hearing Zoe is doing very well. Our webtv newsgroup still follows the site and prayers for both girls. 🙂

    Have tried contacting the manufacturer of the costly drug to see about patient assistance? A phone call generally results in FREE drugs from the company. They do take many things in consideration and folks with extreme circumstances usually brings a positive result… insurance or no insurance.

    You can email me if you have questions. 🙂

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