It’s that time again…Zoe’s Heartiversary. Today marks 8 years with her new heart which makes me wonder, after 8 years, can we still call the heart “new”? I can’t think of anything that’s still considered new after 8 years. Her “old”(?) original(?) heart didn’t last this long. At this point, is it safe to just…
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Bahama-Mama
One week ago today, we returned from Zoe’s Make-A-Wish trip to the Atlantis resort on Paradise Island in the Bahamas. I can’t speak for everyone, but I’m still in denial. Every morning I wake up and hope for that spectacular view of the ocean….every morning I’m disappointed. I’m sure you’ve all seen the commercials for…
There is a special place in hell for the specialty pharmacy
Zoe’s dad’s RX insurance provider, Express Scripts, requires us to use their mail-order specialty pharmacy, Accredo. I hate them. I can’t stress that enough. Previously we used Briova and I can’t say enough nice things about them. They worked tirelessly to get Zoe medication on a holiday weekend when I messed up and forgot to…
Birthdays and other nonsense
It’s probably time for an update so I’m going to work backwards here… We just celebrated Zoe’s 14th birthday on Sunday. I filled my little house with 7 teenage girls and 10 family members. It was cramped but fun. Blowing out 14 birthday candles proved to be a daunting task as it took her 4 tries…