Medical/Biopsy Update

Zoe’s persistent cough is finally starting to go away. 3 and 1/2 months, 6 doctors, 4 rounds of antibiotics, 1 round of steroids, an inhaler, 2 eye drops, and 1 nasal spray later. The transplant team sent her over to see a pulmonologist a few weeks ago. He ran some tests and wanted to try a short course of steriods. If that didn’t work he wanted to schedule her for a bronchoscopy. Bronch’s are unpleasant procedures at best. The patient is awake, but under light sedation. Their nasal passages, throat, and vocal chords are sprayed with a numbing agent so that a tube with a camera (scope) can be passed into the nose, down the back of the throat, and into the lungs. The doctor can then biopsy the lungs if needed, see any growths/fungi/general yucky stuff growing, and do a saline rinse to clean the lungs out. The Pulmonologist got in contact with Dr. Boyle since he’s Zoe’s “gate keeper” about scheduling the procedure. Dr. Boyle is opposed to this procedure for Zoe. It’s unpleasant and kids can come out worse than they went in. It’s just not a good idea to introduce foreign objects into the lungs of an immuno-suppressed but otherwise healthy child. He says maybe someday down the road, but not now. He met with the transplant board and they decided to take her off her blood pressure medication instead of doing a bronch. We stopped the norvasc last Tuesday and her cough has continued to improve all week. She didn’t cough all day yesterday and only 2 or 3 times this morning. Once again, Dr. Boyle saves the day.

Zoe had her biopsy last Friday. The results were 1a and 0 again, which are as  perfect as we could possibly ask for. The only way they could get better is double 0’s. She’s past another transplant milestone, the 2 year mark. She sees Dr. Boyle in April (4 months as opposed to 2) and her next biopsy in June/July (6 months as opposed to 4). She’s pretty psyched. We are blessed and grateful.

While recovering in the unit from her biopsy Zoe made a new transplant friend. His name is Lane and he is also 8 years old. Her received his new heart last month just before Christmas. According to his mom he was a pretty sick little boy before transplant and was placed on the Berlin Heart while he waited for a heart to become available. He’s had some complications with rejection so far but to look at him you wouldn’t know he had ever been sick. He’s a very lively kid and his biopsy results from Friday were improved. The kids exchanged phone numbers and Zoe is pretty happy to  have another transplant friend. After losing Melanie and Aly, I think she’s been a little lonely for someone who understands what it’s like to be her.

4 comments on “Medical/Biopsy Update

  1. God Bless & God Love her! She truly has some pretty special Angels watching over her (like to think we know them personally). I have faith that she is going to see Dr Boyle for a long, long time on what will be routine visits for her to keep her strong & healthy. She is truly blessed as we are as well. How wonderful she has made a new friend & you are ever so correct again, mom….she needs friends that will grow with her that will ‘understand’ what her life has been like & what the years ahead of her will be like as well…. they will be good for each other I’m sure.

    She truly is a strong little girl who will someday grow into being a strong woman…
    hugs & kisses

  2. YAY for good results and YAY for new friends. I am so glad to hear she is doing so well and that her cough is finally clearing up.

  3. So glad to hear she is doing good, and continuing to be strong. She is an amazing little girl. Wow, did you really say she was 8? how time flies! tell her I said hello and miss her.

  4. I’m going to say that’s its most likely an issue with your computer. I’ve never had a problem and I access the blog from different computers.

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