For those of you just joining us:
My daughter, Zoe, is 6. She has cardiomyapathy with severe mitral valve regurgitation as a result. When she was 6 weeks old she got a strain of the echo virus and went into congestive heart failure. She spent 10 days at Rainbow Babies & Children’s hospital in Cleveland, Ohio. 8 of those 10 days were in PICU and 4 of those were spent on a ventilator. She responded well to the treatment and was off her medications shortly after her 1st birthday. We continued to see the cardiologist and were going to be completely discharged from his care April of 2008. October of 2007 she had a relapse and ended up back in the hospital. More tests, more Dr visits and more medications again. After a year of Dr visits and a heartcath and biopsy her cardiologist felt we needed to see a transplant Dr at the Cleveland Clinic “just in case” he said. His worst case scenario has just become my little girl’s reality. Her heart isn’t getting better. We found out recently that transplant is her only hope. Sadly we don’t seem to have a lot of time because the Dr says he hopes to have a new heart for Zoe by Christmas.
My muffin has so many people that care about her and keeping everyone informed is a task for a small army, which I don’t currently have at my disposal so this will be our forum.
She’s small. She’s beautiful. She has a “bum ticker” and this is her site.