Ok so here’s what’s going on: The drainage tubes came out Thursday morning without a problem. She was up a little that night but just to go to the bathroom. She started working with Lisa from cardiac rehab Friday. Our instructions for the weekend were to walk to the fish tank every 2 hours and 3 times a day do her arm and leg strengthening exercises. She walked on the treadmill with Lisa for 10 minutes today. Tomorrow Zoe wants to double her time. She’s suddenly very ambitious.
Tomorrow we’re moving to the Ronald McDonald house. It’s a step in the right direction but still not home. Dr. Boyle mentioned a day pass for Christmas. He hasn’t decided yet and we’re hoping he says yes. Gabe will be coming to stay with us while he’s on break for the holidays. Both kids are pretty excited. We were told we need to be at RMH for 1 month from discharge. We’re 3 weeks past transplant and I’m hoping after her next biopsy next week he sees it in his heart to let us go home. Cleveland is a nice city but I’m ready to go home. So is Zoe.
Once we get to RMH Zoe has big plans. She wants to go to the mall to see Santa. She wants to visit some folks over at Rainbow and she wants to go to the movies. I’m sure she’ll come up with more the longer we’re there.
The spaghetti dinner Friday night was a big success. We pulled in a little over $4,000 which added to what we have will be very helpful in getting Zoe’s prescriptions. Thankfully Mike’s insurance is covering a very very large portion of all this but Alex’s mom Lisa was telling me that Alex’s meds are running $500 a month with insurance. Mike met a kidney tranplant recipient and I guess he was saying that his post transplant meds were running $2,000 a month. Those numbers aren’t pretty. So I wanted to thank everyone for all the support and help. I’d especially like to thank my step mom Sherri. This was her brain child and she did 98% of the work organizing it and getting donations. She did and excellent job and we couldn’t have pulled it off without her. On a side note….I need to fire my 2 accountants from Friday and you know who you are. You lovely gals added a check that was for $150 as $1,500. Boobs. I love you both anyway but my dad said I had to fire you. haha
Congratulations to our friend Alex and her family! Her biopsy showed no change in the level of rejection and she gets to leave RMH and head home to Toledo tomorrow! We’re hoping we get their room……again.