You’re not alone

I’m having trouble viewing the site too.

Apparently Zoe had some fluid build up around her heart. It was worse from Wednesday to Friday. Today she had another echo and it’s much much better. A very minimal amount. Dr. Sterba felt good about it. He said he can go home and not worry about Zoe all day now. We walked to echo and she complained the whole way. It wasn’t a long trip by any stretch of the imagination but she was asleep when we were told echo was ready for us. I’m such a mean mom. I made her wake up and walk her little booty down to the test. I’m obviously some kind of sadist.

The group living in the lobby area here on floor 4 have moved on so I think we’re going to make a trip to the fish tank today. She wants to be lazy. She does well once she gets moving but getting her moving is easier said than done. I think she’ll be less lazy once she gets home. So let’s cross our fingers she continues without complication and her biopsy Tuesday shows only minimal rejection. I’m not looking forward to a stay at Ronald McDonald house. I didn’t want to go there anyway, but after reading Alex’s blog I REALLY don’t wanna go there. I’m clicking my heels together. “There’s no place like home. There’s no place like home.”

On a sad note I’m sorry to say that Hayden Nelson passed away yesterday morning. If you haven’t been there yet, please visit his caringbridge site. He was an amazing little boy and quite the fighter. He will be greatly missed.