Zoe's Heart - Part 19

Dodged a bullett….for now.

May 21, 2009

So I took Zoe to Dr. Danzinger from I.D. yesterday. Her liver enzymes are high, platelet count is low, white count is high. She took blood & ran more tests. Had Zoe’s liver enzymes or platelet count been dramatically worse she’s would have been admitted for a few days (like I haven’t heard that before)…

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CMV

May 19, 2009

I got a call last week from Colleen. She said the blood they took during the biopsy on the 8th showed positive for CMV again. Infectious disease said the level was at 1000. They wanted me to take her for some blood work to have the level checked again to make it isn’t doubling &…

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So Busy…..

April 27, 2009

I apologize for my neglect of the site. Zoe has been doing wonderfully and even went back to school last week. With life back to normal it’s been difficult to find time to update. Her last about 3 1/2 weeks ago and the results were the same as they have been. Good. She had a…

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Cautious Optimism brought down by the hand of medicine

March 7, 2009

There was a light at the end of the tunnel…..too bad it was a faulty light bulb illuminating a dead end. (sigh) What are you gonna do? Zoe’s viral count was 700 on Tuesday after the cytogam & steroids last weekend. Her fever was gone and her tonsils are much much smaller. You can actually…

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Zoe’s Heart began the day our world changed. My daughter, Zoe, received a heart transplant at just six years old. Six. In the span of childhood milestones and bedtime stories, we learned words like “transplant,” “rejection,” “ICU,” and “donor family.” We learned what it means to wait. To hope. To live in the in-between. This blog is our way of sharing the journey — the beautiful, the terrifying, the exhausting, and the miraculous. Zoe’s Heart exists for two reasons: To keep our family and friends updated as we walk this road. And to advocate fiercely for organ donation — because someone else’s yes saved my daughter’s life. This space is raw. It’s honest. It doesn’t pretend the hard parts don’t exist. But it also refuses to ignore the hope. We believe in celebrating progress, honoring the gift of life, and speaking openly about what transplant families experience behind hospital doors. Zoe is living proof that generosity changes everything. Thank you for being here. Thank you for following her journey. And if you ever find yourself wondering whether organ donation matters — it does. It saved our girl. Welcome to Zoe’s Heart.