Just so everyone is aware I just asked Zoe if she’s ever said to anyone that she wishes hadn’t gotten this heart or that she wished she had gone to heaven. She looked genuinely confused and asked why I would ask her that. She saw that I was here on the site and asked if…
Happy New Year
We’re still in the PICU. Should be moved to the step-down unit tomorrow. She’s completely off the IV meds and on an oral anti-hypertensive. Dr. Sterba wanted to monitor her bp today and overnight to make sure it’s stable. So far so good. It hasn’t gone over 120 systolic (top number) all day. I’m crossing my fingers…
Good news & bad news
The good news is that Tuesday night we got moved over to RMH and got the day pass for Christmas. Zoe got to come home, then go to her dads and thenn her papas before she had to be back at RMH Christmas night. She enjoyed being home. Now here’s the bad news. We’re back…
Stepping down from the step-down unit
Ok so here’s what’s going on: The drainage tubes came out Thursday morning without a problem. She was up a little that night but just to go to the bathroom. She started working with Lisa from cardiac rehab Friday. Our instructions for the weekend were to walk to the fish tank every 2 hours and…